Tuesday, November 28, 2023 | 8:00 - 10:00 AM
Main Lecture:
Shifting Perspective: Pediatric Neuropalliative Medicine and the Importance of Prognostic Awareness
Dr. Lauren Treat, University of Colorado School of Medicine
Case Presentation:
A Case of Severe Neonatal Hypotonia: Emerging Prognostic Implications of ACTA1 Variants Among Congenital Myopathies in the Era of Next-Generation Sequencing
Dr. Meghan McAnally, NINDS
Date: November 28, 2023
Location: FAES Classrooms 1 & 2 / Zoom
Timeline:
8:00 a.m. - Coffee Service
8:30 a.m. - Case Presentation
9:00 a.m. - Main Lecture
Remote Access:
Join via Zoom.gov
Meeting ID: 161 630 6399
Passcode: 056336
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Meeting ID: 161 630 6399
Note: For attendance purposes, please log-in to your account through https://hopkinscme.cloud-cme.com and link your cell phone number to your profile. If you do not have an existing account, please sign-up using your NIH e-mail.
Activity Description: Through lecture, discussion and slide show this activity will focus on
Neonatal Hypotonia & Pediatric Neuropalliative Care
Who Should Attend: This activity is intended for Neurologists, Neuroscientists, Neurosurgeons, Neuropsychologists, and Health Care Professionals.
Lecture Specific Educational Objectives:
After attending this activity the participant will demonstrate the ability to:
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Describe a limited differential diagnosis for severe neonatal hypotonia, and when genetic testing should be pursued.
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Understand the unique prognostic implications of ACTA1 pathogenic variants among other genotypes within Nemaline myopathies.
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Characterize elements of serious illness family narrative specific to pediatric neurological disease.
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Distinguish mismatch between technological advances and lagging humanistic considerations.
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Integrate new tools for serious illness communication.
Accreditation Statement: This activity has been planned and implemented in accordance with the Essential Areas and polices of the Accreditation Council for Continuing Medical Education through the joint providership of the Johns Hopkins University School of Medicine and the National Institutes of Health (NIH). The Johns Hopkins University School of Medicine is accredited by the ACME to provide continuing medical education for physicians.
Credit Designation Statement: The Johns Hopkins University School of Medicine designates this live activity for 1.5 credits per session for a maximum of 78 AMA PRA Category 1 Credits™. Physicians should only claim credit commensurate with the extent of their participation in the activity.
Policy on Speaker and Provider Disclosure: It is the policy of the Johns Hopkins University School of Medicine that the speaker and provider globally disclose conflicts of interest. The Johns Hopkins University School of Medicine OCME has established policies in place that will identify and resolve all conflicts of interest prior to this educational activity. Detailed disclosure will be made in the instructional materials.