The Neurogenetics clinic is founded on the belief that understanding the mechanism and causes of disease can lead to effective treatment. Our Neurogenetics Clinic is a one-day outpatient clinic that evaluates individuals and their family members who have a known or suspected inherited/familial neurological disorder.
Some of the disorders seen include: inherited neuropathies, juvenile motor neuron diseases/juvenile ALS, and adult inherited motor neuron diseases. Genetic testing is often offered for diagnostics and research purposes.
If you are a patient with a known or suspected, inherited neurological disorder, interested in participating in our diagnostic and observational study, please contact:
Alice B. Schindler, MS, CGC
Genetic Counselor/Research Coordinator
NIH/NINDS/Neurogenetics Branch
10 Center Drive 2B-51B
Bethesda, MD 20892-1671
Email: schindlerab@mail.nih.gov
Fax: 301-480-0056
OR
Patient Recruitment and Public Liaison Office toll-free at:
1-800-411-1222
TTY: 1-866-411-1010
Neurogenetics Clinic Research Team at NIH:
