Neurogenetics Clinic

The Neurogenetics clinic is founded on the belief that understanding the mechanism and causes of disease can lead to effective treatment. Our Neurogenetics Clinic is a one-day outpatient clinic that evaluates individuals and their family members who have a known or suspected inherited/familial neurological disorder.

Some of the disorders seen include: inherited neuropathies, juvenile motor neuron diseases/juvenile ALS, adult inherited motor neuron diseases, inherited myopathies, inherited movement disorders, atypical parkinsonism, and familial dementias. Genetic testing is often offered for diagnostics and research purposes.

If you are a patient with a known or suspected, inherited neurological disorder, interested in participating in our diagnostic and observational study, please contact:

Alice B. Schindler, MS, CGC
Genetic Counselor/Research Coordinator
NIH/NINDS/Neurogenetics Branch
10 Center Drive 2B-51B
Bethesda, MD 20892-1671
Fax: 301-480-0056


Patient Recruitment and Public Liaison Office toll-free at: 
TTY: 1-866-411-1010

Neurogenetics Clinic Research Team at NIH:

Christopher Grunseich, M.D.
Lasker Clinical Research Scholar and Investigator
Derek Narendra, M.D., Ph.D.
Lasker Clinical Research Scholar
Sonja W. Scholz, M.D., Ph.D.
Senior Investigator
Alice B. Schindler, M.S., C.G.C.
Genetic Counselor